At its core, diabetes disrupts the body’s ability to regulate blood sugar, or glucose, which is a vital source of energy for the body’s cells. However, diabetes is much more than just high blood sugar—it’s a condition that can slowly affect multiple organs, from the heart to the kidneys, eyes, and nerves, if left untreated.
Living with diabetes can be challenging for anyone, but for individuals who are also blind or visually impaired, managing the condition can involve additional hurdles.
In celebration of World Diabetes Day, on November 14, 2024, it is important to highlight the unique challenges the blind and visually impaired have faced while managing diabetes.
Diabetic eye diseases such as diabetic retinopathy, diabetic macular edema, and cataracts play a contributory role in the prevalence of blindness and visual impairment in T&T.
A report by the National Eye Survey of Trinidad and Tobago (NESTT) indicated that diabetic retinopathy is one of the leading factors to blindness among adults over age 40 in T&T (2019). However, it is important to note that blindness and diabetes are not always linked. Many blind individuals are born with a visual impairment or lose their sight due to other conditions, but the hurdles of managing diabetes remain.
For those living with diabetes, monitoring blood sugar levels, administering insulin, and managing medications are crucial components of effective care. However, in the past, for people who are blind or visually impaired, the usability of medical devices such as blood glucose meters, insulin pumps, and continuous glucose monitors (CGMs) presented a significant barrier to effective self-care.
This lack of accessibility and usability in diabetes management tools for the blind exacerbated health risks and created additional challenges for an already vulnerable population. Many glucose meters, insulin pumps, and CGMs relied on small screens or tiny buttons that were difficult or impossible to read or operate for blind or visually impaired individuals. For example, blood glucose meters typically displayed numerical results on a screen without any tactile or voice-guided feedback that could help someone with vision loss interpret the results.
For individuals with Type 1 or advanced Type 2 diabetes, insulin injections and pens are pertinent in the management of diabetes. Long ago, the syringes used for measuring the correct dosage had small markings, numbers, and lines, making it difficult for blind and visually impaired individuals to read. According to Trief et al (2016), administering an incorrect dose of insulin can have serious consequences, either leading to dangerously high blood sugar (hyperglycemia) or dangerously low blood sugar (hypoglycemia), both of which require immediate action.
Along with the aforementioned, other aspects of diabetes care, such as dietary management and exercise, can also be challenging for those who are blind when there is no proper accessibility to information and physical space for exercise. In terms of managing diet, blind and visually impaired individuals experienced difficulties in reading food labels or recognising ingredients.
Identifying whether a food is high in carbohydrates, sugar, or fat is essential in controlling blood sugar levels. Despite these challenges, with the advancement of technology, blind and visually impaired individuals living with diabetes can effectively manage their conditions. There are numerous tools and innovations in the 21st century that enhance the quality of life for this population.
Some of these are:
Audible Blood Glucose Meters: Many blood glucose meters now come with audio features that verbally announce blood sugar readings. These meters may use a voice output or a sound that indicates whether blood sugar is in a safe range, helping blind individuals manage their diabetes without needing to rely on sight.
Smartwatches and Wearable devices: Devices like the Apple Watch or Samsung Galaxy Watch can pair with glucose monitors to provide timely, auditory, or vibrating alerts about blood sugar levels, insulin schedules, and exercise goals. Wearables can also provide notifications when a person’s glucose levels fall outside a safe range, helping blind individuals to take immediate action.
Braille and Tactile Labels: For those who read Braille, insulin pens and syringes with Braille labels are available. Additionally, food manufacturers may offer products with tactile labels or Braille information, enabling individuals to identify nutritional details without needing sighted assistance.
Voice Assistants and Smart Home Technology: Voice-controlled smart devices, such as Amazon Alexa or Google Assistant, have become invaluable in providing hands-free control of tasks. These devices can be used to set reminders for medication, meals, and exercise routines and can even be integrated with diabetes management apps to log blood sugar levels or insulin doses.
Virtual Assistant Apps: Smartphone apps like “Be My Eyes” and “Aira” allow blind individuals to connect with sighted volunteers who can read product labels or help identify foods.
Exercise: A crucial aspect of diabetes management is regular exercise. Many individuals who are blind or visually impaired suffering from diabetes encounter numerous challenges when trying to find safe spaces for walking or running, particularly in outdoor areas with uneven surfaces. They can, however, engage in exercise from the comfort of their own homes.
This column is supplied in conjunction with the T&T Blind Welfare Association Headquarters: 118 Duke Street, Port-of-Spain, Trinidad. Email: ttbwa1914@gmail.com; Phone: (868) 624-4675; WhatsApp: (868) 395-3086.